Discussion on Open data for Rare diseases : An Indian Perspective

Organised by DST-Centre for Policy Research at the Centre for Society and Policy, Indian Institute of Science
Date: 25th February 2021,  Time 6:30 PM – 8:30 PM IST

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Prof. Vijay Chandru

Faculty at the Centre for BioSystems Science and Engineering at IISc.

Executive advisor for healthcare to ARTPark, an innovation hub of DST at IISc.

Founder, OPFORD (Open Platform for Rare Diseases) Foundation.

Commissioner, Lancet Citizens Commission for Reimagining India’s Health Systems.

Prof. Arkalgud Ramaprasad

Director of the Ramaiah Public Policy Center, Bengaluru, India. 

Professor Emeritus of Information and Decision Sciences at the University of Illinois at Chicago, USA.


Dr. Harsha Rajasimha

Founder and CEO, Jeeva Informatics Solutions Inc., Tysons Corner, VA, USA. 

Founder Chairman, Indo US Organization for Rare Diseases, Herndon, VA, USA.

Dr. Shilpi Bhattacharya

Professor of Law at Jindal Global Law School, O.P. Jindal Global University, India 

Trustee of World Without GNE Myopathy (WWGM).

Discussion on Open data for Rare diseases : An Indian Perspective


Dr. Mohua Chakraborty Choudhury 

Dr. Pragya Chaube 

Event Coordinators

Dr. Mohua Chakraborty Choudhury

Dr. Moumita Koley

Dr. Pragya Chaube

Dr. Gautam Sharma

Mr. Nabil Ahmad Afifi

DST CPR Center Head

Prof. T. A. Abinandanan