Rare diseases

Rare diseases

Rare Diseases

Rare diseases (RD) are severe and debilitating conditions that affect a small fraction of the population. These diseases are often not prioritised in the agenda-setting of government or the pharmaceutical industry. As such, there is a huge lack of awareness and medical attention to these diseases. This project aims to analyse the policy environment in India and identify the facilitators and barriers towards achieving equitable and affordable healthcare for people living with RDs. Through this project, we also attempt to explore ways to integrate public health thinking into RD management, raise awareness, and initiate discussion around RDs in India.

For more information, please contact Dr. Mohua Chakraborty Choudhury- mohuac@iisc.ac.in

Open Science

Open Science

Open Science

The benefits of open science are multifold. It fosters transparency and efficiency of research and encourages collaborations and maximum resource utilisation. Overall, open science stimulates economic growth and meaningful scientific interventions in public lives. If we can adapt the practices of open science, it will be beneficial to guide the Indian research system towards higher competitiveness and quality. Researchers from the publicly funded Universities should share research publications and more importantly, research data, which includes negative results as well. More engagement/ dialogue between researchers and the public must be encouraged to make research more societal-need driven. There is an urgent need to stop relying on a “one-sided evaluation system” based on research articles and journal impact factors for research evaluation, funding. More importantly, the very fundamental of research projects must be the need of the society, not driven by the research choices of high impact commercial journals.

Free flow of science will help promote a transparent, collaborative and inspirational research process. The advancement of digital technologies has created online platforms to organise and publish the results of research projects, scientific publications and large data sets and make them available to a broader scientific community, potential users from the MSME sectors and the public in general. Cross-discipline learning and collaboration became a reality with the advancement of technologies. However, only a smaller section of the scientific community has woken up to support the causes of open science. We need wider participation to make open science a reality. It is very much true for India as well. We are far behind in adopting the open science practices. Nurturing open science will need some push from the system to make the researchers adopt open science practices.  It’s high time for us to embrace the concepts of open science. Open science can potentially navigate the current research ecosystem from publications driven to societal need driven.

For more information, please contact Dr. Momita Koley- moumitakoley@iisc.ac.in

Emerging Technologies

Emerging Technologies

Emerging Technologies

Emerging Technologies such as AI, Blockchain, Genome editing and Quantum technologies are essential drivers of the next phase of development. However, their immense possible impact on all walks of life necessitates the formulation of policy frameworks for their governance. Such policy frameworks should also incorporate tech diplomacy and global tech governance dimensions due to the inherently transboundary nature of these technologies. This project is an early attempt towards developing policy and governance frameworks for emerging technologies with the initial focus on Genome editing and Quantum technologies.

For more information, please contact Dr. Suryesh K Namdeo- suryeshn@iisc.ac.in

Scientometrics Analysis

Scientometrics Analysis

Scientometric Analysis

Scientometrics is the study of measuring and analyzing science, technology and innovation, which includes the measurement of impact, reference sets of articles to investigate the impact of journals and institutes, understanding of scientific citations, mapping scientific fields and the production of indicators for use in policy contexts. The Centre has an active working group on scientometrics with the focus on accessing how well Indian institutions perform in various fields of scientific research. The team, led by Prof. Subbiah Arunachalam (a globally renowned scientometrician), has developed a methodology for data-collecting and a general framework for studying the research performance of Indian institutions in various scientific disciplines. Through which, the Centre currently has on-going studies to evaluate the research performance of some of the major disciplines, such as chemistry, engineering, materials, astrophysics, mathematics, biological sciences, and physics. 

For more details, please contact, Prof. Subbiah Arunachalam – arunachalams@iisc.ac.in | subbiah.arunachalam@gmail.com