Author: Sowmya

Rare diseases in Public Health: An Indian Context

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Rare diseases in Public Health: An Indian Context
DST-CPR-IISc in partnership with Ashoka University invites you to

Rare Diseases in Public Health

An Indian Context

Session I: Equity in the representation of Rare Diseases in Public Health agenda

February 19, 2022 | 4:00 PM – 6:00 PM (IST)  
Click here to Register for this session

Session II: Strengthening the Rare Disease Registry in India

February 20, 2022 | 9:30 AM – 12:00 PM (IST)
Click here to Register for this session

Session I: Equity in the representation of Rare Diseases in Public Health agenda

This International Rare Diseases Day 2022, we take a critical look at the representation of rare diseases (RDs) in the health agenda and policy of the country and seek answers to the following questions:. Do RDs receive equal representation with common diseases in the country’s health agenda and policies in the public and private sectors? How can we ensure equity in the representation of RDs in public health programmes and in health systems delivery? How do we ensure equity in the representation of RDs in the private sector? We invite an expert panel to deliberate over this critical matter to ensure equity of RDs in public health in the Indian context.

Keynote Address

Dr. Jyotsna Dhawan

CEO, DBT/Wellcome Trust India Alliance

Welcome Address

Prof. L.S. Shashidhara 

Professor and Dean of Research, Ashoka University

Panelists

Dr. Arjun Singh

National Advisor, Rashtriya Bal Swasthya Karyakram (RBSK)

Dr. Ratna Devi

Chair of The Board of International Alliance of Patients’ Organizations (IAPO)

Dr. Narendra Chirmule

CEO, Symphony Tech Biologics, and former Head of R&D Biocon

Dr. Prashanth Srinivas

Assistant Director (Research), Health Equity cluster lead, Institute of Public Health

Moderators

Dr. Mohua C. Choudhury

DST-STI Policy Fellow
DST-CPR-IISc Bengaluru

Dr. Pragya Chaube

Senior Project Associate
DST-CPR-IISc Bengaluru

Session II: Strengthening the Rare Disease Registry in India

This International Rare Diseases month 2022, we take a comprehensive look at the rare diseases registry mechanism in India and examine greater ways and means to strengthen it in the health policy agenda of the country. We invite an expert panel from India and overseas to deliberate on the strengthening of the rare disease registry in India. What is the present status of the National Registry for Rare Diseases? What could be the potential ways and means to strengthen it? Learning from experiences of APEC and exploring the possibilities of adopting similar strategies in the Indian context.

Keynote Address

Dr. V. M. Katoch

Former Director General, Indian Council of Medical Research

Welcome Address

Dr. Akhilesh Gupta

Senior Adviser/Scientist-H, Head of Policy Coordination & Programme Management (PCPM) Division, Department of Science & Technology (DST)

Panelists

Prof. Matthew Bellgard

Director of eResearch, Division of Research, Queensland University of Technology

Prof. Alok Bhattacharya

Professor & Head of the Biology Department, Ashoka University

Dr. Deepa Bhat

Genetic Counselor and Associate Professor, JSS Medical College

Dr. Reeta Rasaily

Former Scientist ‘G’ ICMR and Programme Officer for Rare Disease Registry

Dr. Sudha Bhattacharya

INSA Senior Scientist, Ashoka University

Moderators

Dr. Mohua C. Choudhury

DST-STI Policy Fellow
DST-CPR-IISc Bengaluru

Dr. Anjali Taneja

Associate Director
Science Policy Initiative
Office of Research & Development
Ashoka University

Event Organizers

Core Team

Dr. Mohua Chakraborty Choudhury (DST-CPR-IISc)

Dr. Anjali Taneja (Ashoka University)

Dr. Pragya Chaube (DST-CPR-IISc)

Supporting Team

Dr. Moumita Koley (DST-CPR-IISc)

Mr. Saikat Batabyal (DST-CPR-IISc)

Ms. Sowmya Narsipur (DST-CPR-IISc)

DST – CPR, IISc Policy Lecture Series-Challenges and opportunities in research education and training

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DST – CPR, IISc Policy Lecture Series-Challenges and opportunities in research education and training

DST-CPR-IISc Policy Lecture Series

Lecture 3

Challenges and opportunities in research education and training:

From governmental policies to individual commitments to a focus on sustainable development goals including social justice

Date: 15th February, 2022    |   Time 4:00 PM – 5:30PM (IST)
Abstract

This talk will provide the context to the experience of policy scholars by presenting macro- and micro-level changes in doctoral education and postdoctoral training worldwide. For 25 years, globalization and an increasing size of a middle-class in many countries around the world, have moved governmental attention to doctoral education and research for innovation. Governments, hereby, followed the economic model that views knowledge as a critical national resource for economic growth, innovation, and international competitiveness.The predominant models of research education reforms used by governments were monetary incentives often in forms of direct funding to universities for desired outcomes and competitive funding schemes for doctoral and postdoctoral programs with specified characteristics. The positive and negative consequences will be illustrated.

The way forward encourages the policy scholars to not only to work hard, but to develop and internalize a sustainability mindset and use the space and time now to question the status quo, to examine the reproduction of inequality, and to become aware and prepare for their future ethical leadership.

About the Speaker

 

Prof. Maresi Nerad

Professor for Higher Education at the University of Washington,

Visiting Professor at DST-CPR, IISc.

Prof. Maresi Nerad is the founding director of the Center for Innovation and Research in Graduate Education, Professor for Higher Education at the University of Washington and a Visiting Professor at the DST Centre for Policy Research at IISc, Bengaluru. Her work focuses on a broad range of issues in doctoral education and in early research careers worldwide. She has undertaken evaluation research for flagship interdisciplinary doctoral programs in the U.S., Germany and for the European Commission. She has written and edited 5 books and published numerous articles on doctoral education. 

For more details on her work, click here.

Click here to join the lecture on 15th February, 4:00PM

Feminist Perspectives on Science & Science Policy

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Feminist Perspectives on Science & Science Policy
Abstract

Science and gender equality are both vital for achieving the 2030 Agenda for Sustainable Development. Despite institutional and cultural shifts for bringing more women in STEM education and related careers, we are witnessing gender gaps across all levels of STEM education, in science-related careers as well as at leadership positions. How do we leverage the untapped potential of women trained in STEM?

On the occasion of International Day of Women and Girls in Science, the DST-Centre for Policy Research at IISc. is partnering with UNESCO, New Delhi to reinvigorate the significance of feminist science, in theory and practice. This panel discussion aims to bring diverse perspectives and different voices for deliberating on feminist approach to science and science policy and exploring the need for dialogue among stakeholders supporting feminist perspectives in Science, Technology & Innovation (STI). We will examine how Feminist Perspectives can provide an alternative to dominant thinking and accounts in Gender and STI. Furthermore, the discussion will aim to suggest the way forward for constructive engagements with Philosophies of Feminist science and science policy which are relevant to the Indian context.

This discussion will be a great learning opportunity for students, early career researchers and policy practitioners who work on gender equity and inclusion in STI.

Concept Note_11th Feb 2022

Panellists

Prof. Banu Subramaniam

Professor, Women, Gender, Sexuality Studies, University of Massachusetts Amherst, USA

Prof. Gita Chadha

Faculty Member, Sociology Department, University of Mumbai, India

Dr. Asha Achuthan

Assistant Professor, Tata Institute of Social Sciences (TISS), Mumbai, India 

Moderators

Dr. Nimita Pandey

STI Postdoctoral Policy Fellow, Centre for Policy Research, Indian Institute of Sciences (IISc)

Dr. Debanjana Dey

STI Postdoctoral Policy Fellow, Centre for Policy Research, Indian Institute of Sciences (IISc)

Organizers

Dr. Nimita Pandey

Ms. Sowmya Narsipur

Coordinator

Prof. T A Abinandanan

Additional Resources

(1) Click here to read the UNESCO article summarizing this event 
(2) Prof. Gita Chadha’s presentation:

(3) Recording of this event:

Workshop on Qualitative Research Methodologies

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Workshop on Qualitative Research Methodologies

Workshop on Qualitative Research Methodologies

20-21 January 2022 at 4.00 pm to 6.00 pm (IST)

This two-day workshop was conducted virtually as part of capacity building for the DST-CPR community to help them hone their qualitative research skills. 

About the speaker:

Ajit Mani, a certified Management Consultant and an alumnus of IIM Bangalore specializing in Agriculture and Rural Development Management, has built a broad range of professional experience working with NGOs and Government Agencies in India and abroad. His work focusses mainly on rural India and the unorganized urban sector. He has worked on various assignments in education, poverty, forest management, financial inclusion, sustainable urban development, among others.

He uses his expertise in research methodology and project management to provide policy training in both academia and industry. He has served as adjunct faculty for Kalinga School of Rural Management, Bhubaneshwar and has many years’ experience in designing courses and delivering public policy lectures. During this two-day workshop, he will be drawing from his own work experiences and using case-studies to cover topics in qualitative research methodologies to aid public policy research.

Group photo