Panel Discussion on Open data for Rare diseases

Panel Discussion on Open data for Rare diseases

Discussion on Open data for Rare diseases : An Indian Perspective

Organised by DST-Centre for Policy Research at the Centre for Society and Policy, Indian Institute of Science
 
Date: 25th February 2021,  Time 6:30 PM – 8:30 PM IST

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Panelists

Prof. Vijay Chandru

Faculty at the Centre for BioSystems Science and Engineering at IISc.

Executive advisor for healthcare to ARTPark, an innovation hub of DST at IISc.

Founder, OPFORD (Open Platform for Rare Diseases) Foundation.

Commissioner, Lancet Citizens Commission for Reimagining India’s Health Systems.

Prof. Arkalgud Ramaprasad

Director of the Ramaiah Public Policy Center, Bengaluru, India. 

Professor Emeritus of Information and Decision Sciences at the University of Illinois at Chicago, USA.

 

Dr. Harsha Rajasimha

Founder and CEO, Jeeva Informatics Solutions Inc., Tysons Corner, VA, USA. 

Founder Chairman, Indo US Organization for Rare Diseases, Herndon, VA, USA.

Dr. Shilpi Bhattacharya

Professor of Law at Jindal Global Law School, O.P. Jindal Global University, India 

Trustee of World Without GNE Myopathy (WWGM).

Discussion on Open data for Rare diseases : An Indian Perspective

Moderators

Dr. Mohua Chakraborty Choudhury 

Dr. Pragya Chaube 

Event Coordinators

Dr. Mohua Chakraborty Choudhury

Dr. Moumita Koley

Dr. Pragya Chaube

Dr. Gautam Sharma

Mr. Nabil Ahmad Afifi

DST CPR Center Head

Prof. T. A. Abinandanan

Discussion on the Draft of 5th National STI Policy

Discussion on the Draft of 5th National STI Policy

       Discussion on the Draft 5th National STI Policy

Organised by DST-Centre for Policy Research at the Centre for Society and Policy, Indian Institute of Science
 
       Date: 24th January 2021                                               Time: 4:15 PM – 7:00 PM

Open Science – The Way Forward for India

Time: 4:15 PM to 5:15 PM 

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Prof. Rajesh Tandon

Prof. Rajesh Tandon is an internationally acclaimed leader and practitioner of participatory research and development. He is Founder-President of Participatory Research in Asia (PRIA), a global centre for participatory research & training since 1982. He is also Co-Chair of the UNESCO Chair on Community Based Research and Social Responsibility in Higher Education since 2012. He also heads the Forum for Indian Development Corporation (FIDC) as its chairperson.

Prof. Amitabh Joshi

Prof. Amitabh Joshi is a Professor at JNCASR Bangalore, a J. C. Bose National Fellow and the Editor-of-Publications, Indian Academy of Sciences, Bangalore. He is also a Founding Member, and Member, Executive Council of Indian Society of Evolutionary Biologists.

Prof. Sudeshna Sarkar

Prof. Sudeshna Sarkar is a Professor at the Computer Science & Engineering Department and the Head of Centre of Excellence in Artificial Intelligence at IIT Kharagpur. Her broad topics of interest span different areas of Artificial intelligence, Machine Learning and Natural Language Processing.

 

Fostering Research and Innovation: The Road towards Self Reliance

Time: 5:30 PM to 7:00 PM 

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Prof. Rishikesha T. Krishnan

Prof. Rishikesha Krishnan is Director and Professor of Strategy at the Indian Institute of Management Bangalore (IIM B). He was earlier Director of IIM Indore. He held the Jamuna Raghavan Chair in Entrepreneurship at IIMB from 2007 to 2010. His main areas of interest are strategy and innovation. He has been listed in the Thinkers50 India list of most influential management thinkers from India.

Prof. Navakanta Bhat

Prof. Navakanta Bhat is the Chairperson, Centre for Nano Science and Engineering at IISc Bangalore. He was awarded the Infosys Prize 2018 in Engineering and Computer Science.

Dr. Tabassum Jamal

Dr. Tabassum Jamal has worked as Chief Scientist at CSIR National Institute of Science Technology and Development Studies (NISTADS). Her long experience with CSIR-NISTADS has contributed significantly in the area of Technology and Social Change.

Dr. Radha Rangarajan

Dr. Radha Rangarajan is the Chief Scientific Officer at HealthCube, responsible for product development, clinical validation and regulatory affairs. She has almost two decades of R&D experience in industry and academia. She was awarded the FICCI Award of Excellence-Women in R&D in 2019. She was selected for the “Champions of Change” initiative of Prime Minister Modi and the NITI Aayog in 2017.

Discussion on the Draft 5th National STI Policy 

Moumita Koley

Moumita Koley

Moumita Koley

VISITING SCHOLAR

DST-CPR, Indian Institute of Science

Research interests:

Moumita’s research interest is focused on making science available to everyone. She is passionate about finding the ways to make open science a reality in India. Her research is focused on comparing the open access and open data policies across the globe to find out the suitable open science guidelines for Indian research ecosystem. Her pursuit for open science does not just end at designing policies. She is also interested in finding the ways to disseminate the knowledge effectively among researchers and general publicMoumita is also interested in open source drug discovery and want to expand her research on open science in the field of open source discovery of medicines. She is also interested in science diplomacy and use it as a tool to bring the emerging economies to cooperate and make open science a global reality.  

Background:

Moumita has completed her Ph.D from the Technical University of Vienna (TU, Vienna), Austria, in 2010. Her area of expertise is in the domain of synthetic organic chemistry and medicinal chemistry. She was the recipient of the best Ph.D thesis award from the TU Vienna (Hannspeter Winter Preis-2011) She was also awarded Uni:Invent Award from the Austrian Ministry of Science and Research. She continued as a post-doctoral researcher in TU Vienna and Indian Institute of Science (IISc) and investigated problems in the research field of metal and enzyme catalysisMoumita then decided to explore teaching and joined the IISc as UG Instructor in chemistryWhile teaching in the UG programme at IISc, she became interested in the science policy research areas, such as Open Science, Open Source Drug Design, Citizen Science, Research Assessment etc. She joined the DST- Centre for Policy Research, IISc Bangalore as a post-doctoral researcher (2020-23) and pioneered to develop an ‘Open Science’ research vertical within the centre. Currently. she is working as a consultant with International Science Council (ISC) for ‘The Future of Scientific Publishing’ project  and a visiting scholar of DST-CPR, IISc Bangalore.

Publications:

Book Chapters & reports:

Suchiradipta, B. and Koley, M. (2023) Exploring the Current Practices in Research Assessment within Indian Academia. https://sfdora.org/2023/02/16/community-engagement-grant-report-exploring-the-current-practicesin-research-assessment-within-indian-academia/ 

Suchiradipta, B. and Koley, M. (2022). Research assessment in India: What should stay, what could be better? DST-CPR, IISc. https://dstcpriisc.org/iisc/wp-content/uploads/2022/09/Research-Assessment-in-India.pdf 

Power Resources of STI Diplomacy in the Global South. Jenice Goveas & Moumita Koley. Science, Technology and Innovation: the International Dimension. Accepted. 

Synthesis and Modification of Heterocycles by Metal catalyzed Cross-Coupling Reactions: With Contribution by: Á. Balázs, G. Dormán, J. Gerencsér, M. Koley, A. Kotschy, M.D. Mihovilovic, Z. Novák, L. Rycek, M. Schnürch, R.S.G.R. Seixas, A.M.S. Silva, V.L.M. Silva, L. Wimmer. Topics in Heterocyclic Chemistry. Springer.

Popular articles and Policy Briefs:

https://science.thewire.in/the-sciences/research-evaluation-system-national-culture/

https://www.deccanherald.com/science-and-environment/an-era-of-open-science-1051288.html

 https://science.thewire.in/the-sciences/india-can-have-its-own-open-access-digital-publishing-platform/ 

https://timesofindia.indiatimes.com/blogs/voices/unwinding-the-open-data-debate-for-rare-diseases/ 

https://timesofindia.indiatimes.com/blogs/voices/open-access-a-problem-way-beyond-one-nation-one-subscription/ 

https://www.psa.gov.in/article/great-power-comes-great-responsibility/3906

Policy Brief:

Open Research Data for India: Exploring Infrastructure and Governance. 

https://dstcpriisc.org/iisc/wpcontent/uploads/2022/06/Open-Research-Data_Policy-Brief.pdf

Journal Publications:

Chaube, P.; Koley, M. (2023). Does South Asia need a regional dialogue on Open Science?. Science Diplomacy. Vol 6(4). Perspective Article. Link: https://niscpr.res.in/includes/images/sciencediplomacy/Science-Diplomacy-April-June-2023.pdf

Koley, M.; Lala, K. (2023). Limitations of the “Indian One Nation, One Subscription” Policy Proposal and a Way Forward. Journal of Librarianship and Information Science.                                                  (https://doi.org/10.1177/09610006221146771). 

Koley, M. (2022). Open Science in Drug Discovery: Addressing the Gaps in Traditional Model of Developing New Medicines. CSIR NScPR Science Diplomacy (2022). Vol 6. Perspective Article. 

Koley, M. (2022). Analysis of Open Science Policy Recommendations Proposed in India’s 5th Science, Technology and Innovation Policy Draft. Journal of Science Policy & Governance. Vol 21, Issue 02. https://www.sciencepolicyjournal.org/uploads/5/4/3/4/5434385/koley_v21_i02.pdf

Koley, M.; Lala, K. (2022). Changing dynamics of scholarly publication: a perspective towards open access publishing and the proposed one nation, one subscription policy of India. Scientometrics. https://doi.org/10.1007/s11192-022-04375-w

Koley, M.; Lala, K. (2022). Are Journal Archiving and Embargo Policies Impeding the Success of India’s Open Access Policies? Learned Publishing. https://doi.org/10.1002/leap.1441

Koley M., Namdeo S.K., Bhattacharjee S., Affi N. A. (2022). Digital Technologies for Open and Equitable Sharing of Knowledge in India. Journal of Librarianship and Information Science. http://dx.doi.org/10.31219/osf.io/mc8xr

Peramunugamage, A. Kushwaha, P. K., Koley, M. et. al. (2021). Science for Diplomacy: Enabling a Knowledge Sharing and Capacity Building Framework for Water and Sanitation in South Asia. RIS Science Diplomacy Review, 3, 27-40. Read here.

Namdeo, S.K. & Koley, M. (2021) Citizen Science in India: Introduction, Challenges and Way Forward. DIALOGUE-Science, Scientist, and Society. http://dx.doi.org/10.29195/DSSS.03.01.0031

Jayaraman, D.; Joy, M.; Koley, M.* Chem. Educator, 2019, 24, 1. 

Schaaf, P.; Bayer, T.; Koley, M. et.al. Chem Commun, 2018, 54, 12978. 

Mike, A. K.; König, K.; Koley, M.; Heher, P.; Wahl, G.; Rubi, L.; Schnürch, M.; Mihovilovic, M. D. ; Weitzer, G.; Hilber, K. Cellular Physiology and Biochemistry 2014, 33, 205-221. 

Koley, M.; Wimmer L.; Schnuerch, M.; Mihovilovic, M. D. J. heterocyclic. Chem. 2013, 50, 1368-1373. 

Koley, M; Mike, A. K.; Heher, P.; König, K.; Schoen, M.; Schnürch, M.; Hilber, K.; Weitzer, G.; Mihovilovic, M. D. Med. Chem.Comm.2013, 4, 1189-1195. 

Koley, M.; Dastbaravardeh, N.; Mihovilovic, M. D.; Schnuerch, M. Chem. Cat.Chem. 2012, 4, 1345–1352. 

Koley, M.; Kirchnar, K.; Mereiter, K. Acta Cryst. 2011, E67, m1842–m1843 

Koley, M.; Schnuerch, M.; Mihovilovic, M. D. Tetrahedron 2011, 67, 4169-4178. 

Koley, M.; Wimmer L.; Schnuerch, M.; Mihovilovic, M. D. Eur. J. Org. Chem. 2011, 1972-1976. 

Koley, M.; Koneig, X.; Hilber, K.; Schnuerch M., Stanetty, P.; Mihovilovic M. D. ARKIVOK. 2011, 6, 45-61. 

Koley, M.; Schnuerch, M.; Mihovilovic, M. D. Synlett. 2010, 10, 1505-1510. Koley, M., Sarkar, B.; Ghumaan, S.; Bulak, E.; Fiedler, J.; W. Kaim, W.; Lahiri, G.K. Inorg. Chem. 2007, 46

Patent:

US 8,986,994 B2 – Substituted pyridines and pyrimidines. Mihovilovic, Marko; Schnuerch, Michael; Koley, Moumita; Hilber, Karlheinz; Koenig, Xaver. 

 

Mohua Chakraborty Choudhury

Mohua Chakraborty Choudhury

Mohua Chakraborty Choudhury

Visiting scholar

DST-Centre for Policy Research, Indian Institute of Science, Bengaluru

Research Interests 

Mohua works on health policy research focusing on aspects of equitable and inclusive health that can benefit all sections of society. She has specific interest in understanding the challenges faced by the rare disease community in India and identifying the policy and public health interventions that can help to provide better quality of life to such individuals and families. To address these issues, she also takes special interest in analysis of Orphan Drug approval system and Clinical trials data. Further, as a part of the STIP 2020 Secretariat, she has gained first-hand experience of a national policy formulation process.

 

Background:  

Post-doctoral Research Fellow (2019-2020)  

Institute of Bioinformatics and Applied Biotechnology, Bengaluru 

Involved in a project to quantify the reporting of clinical trials of orphan drugs in clinicaltrials.gov by comparing them with those that were mentioned in FDA approval documents. 

 

National Post-doctoral Fellow (2017-2019)  

Institute of Bioinformatics and Applied Biotechnology, Bengaluru 

Analyzed clinical trials associated with approval of all the orphan drugs approved by the US-FDA. Captured the present scenario of rare disease treatment and management in India through a series of interviews with key persons in the patient advocacy groups and orphan medicinal product industry. [Related publications: Ref* 1, 2, 3, Presentation 1] 

 Ph.D in Biotechnology (2011-2015) 

Assam University, Silchar 

Taxonomic and molecular identification of Indian freshwater fishes along with genomic data analysis and molecular phylogenetic analysis to identify species, developing DNA barcode libraries and resolve discrepancies in species classification. 

 M.Sc in Bioinformatics (2008-2010) 

Banasthali University, Banasthali, Rajasthan 

 

Publications 

Choudhury MC, Saberwal G: The work, goals, challenges, achievements, and recommendations of orphan medicinal product organizations in India: an interview-based study.Orphanet Journal of Rare Diseases 2019; 14:241 

Choudhury MC, Saberwal G: The role of patient organizations in the rare disease ecosystem in India: an interview-based study.Orphanet Journal of Rare Diseases 2019; 14:117 

Choudhury MC, Saberwal G: Patient advocacy.Current Science 2019; 3:116 

Chakraborty M, Dhar B, Ghosh SK. Design of character‐based DNA barcode motif for species identification: A computational approach and its validation in fishes. Molecular Ecology Resources 2017;17:1359–1370. 

Chakraborty M, Ghosh SK: An assessment of the DNA barcodes of Indian freshwater fishesGene 2014, 537(1):20-28. 

Chakraborty M, Ghosh SK: Unraveling the sequence information in COI barcode to achieve higher taxon assignment based on Indian freshwater fishesMitochondrial DNA 2014, 0(0):1-3 

Dhar B, Chakraborty M, Devi NN, Malvika S, Chakraborty M, Trivedi S, Aloufi AA, Ghosh SK Molecular Identification of Reptiles from Tabuk Region of Saudi Arabia Through DNA Barcoding: A Case StudyIn: DNA Barcoding and Molecular PhylogenyEdited by Trivedi S., Rehman H., Saggu S., Panneerselvam C., Ghosh S. Springer International Publishing 2018, 397-411 

Chakraborty M, Ghosh SK, Khomdram B: Revealing the genetic diversity of Clarias batrachus using DNA barcode. Journal of Environment and Socio-biology 2013, 10(1):25-32. 

Chakraborty M, Chatterjee A, Krithika S, Vasulu TS: A Statistical Analysis of MicroRNA: Classification, Identification and Conservation Based on Structure and Function. In: Growth Curve and Structural Equation Modeling: Topics from the Indian Statistical Institute. Edited by Dasgupta R. Cham: Springer International Publishing 2015, 223-258 

Mahadani P, Devi KM, Das MM, Chakraborty M, Rahman F, Hansa J, Ghosh SK: Bioinformatics in DNA Barcoding. In: A text book on DNA Barcoding 2013, ISBN 81- 922989-4-8. 

Talukdar FR, Ghosh SK, Laskar RS, Mahadani P, Chakraborty M, Dhar B, Bhattacharjee MJ: Implication of nucleotide substitution at third codon position of the DNA barcode sequencesJournal of Environment and Socio-biology 2013, 10(1):55-63. 

Sengupta A, Vasulu TS, Varshney M, Mohapatra R, Chakraborty M: Statistical Analysis of Human miRNAProceedings of the Ninety ninth Session of the Indian Science Congress Section of Mathematical Sciences; Bhubaneshwar 2012. 

Ghosh SK, Bhattacharjee MJ, Ksh MD, Ahanthem M, Kundu S, Mahadani P, Dhar B, Khondram B, Chakraborty M, Rahman F, Mondal R, Hansa J, Laskar RS, Mazumdar TH, Sarkar P, Rajbonshi S, Chakraborty A, Das MM, Ghosh PR, Das KC and Laskar BA: DNA Barcoding: Digital Taxonomy of BioresourcesStrategic Physiological Research for Sustainable Animal Biodiversity 2011, 268-275.

Open Access 2020 Equity and inclusion in global open access scholarly communications

Open Access 2020 Equity and inclusion in global open access scholarly communications

Equity and inclusion in global open access scholarly communications need more South-South dialogue and cooperation; perspective from Latin America experience

Prof. Dominique Babini

Open Access and Open Science Advisor, Latin American Council of Social Sciences

Prof. Arianna Becerril García

Executive Director, Network of Scientific Journals from Latin America and the Caribbean, Spain and Portugal

Date: 24rd October 2020              
Time: 5:30 PM (IST)

Open Access 2020 Is Copyright a Hindrance for Open Access in India?

Open Access 2020 Is Copyright a Hindrance for Open Access in India?

Is Copyright a Hindrance for Open Access in India

Ms. Anubha Sinha 

Researcher at Centre for Internet and Society, India. She works on digital rights issues, including copyright law and openness.

Dr. Arul George Scaria

Associate Professor, National Law School, Delhi. His key areas of interest and specialisation are innovation, intellectual property rights, and competition law.

Date: 23rd October 2020              
Time: 3:30 PM (IST)

Open Access 2020 Access, Equality and Cognitive Justice

Open Access 2020 Access, Equality and Cognitive Justice

Access, Equality and Cognitive Justice: What are the Problems with Scientific Journals and Research Evaluation?

Professor Jean-Claude Guédon

Leading advocate of open access publishing, at the University of Montreal. He is the founder of the first Canadian scholarly electronic journal Surfaces (started in 1991) and a Steering Group member of Open Humanities Press. He has advised numerous governmental bodies. In 2018, the Jean-Claude Guédon Prize was established to reward “the best article on the issues of scholarly publications and/or open access.

 
Date: 22nd October 2020                                       
Time: 5:30 PM (IST)

 

International Open Access Week Seminar 2020

International Open Access Week Seminar 2020

International Open Access Week Seminar 2020

Cordially invites you to

International Open Access Week Seminars

Professor Jean-Claude Guédon

Access, Equality and Cognitive Justice: What are the Problems with Scientific Journals and Research Evaluation?

Ms. Anubha Sinha 

Researcher at Centre for Internet and Society, India. She works on digital rights issues, including copyright law and openness.

Dr. Arul George Scaria

Associate Professor, National Law School, Delhi. His key areas of interest and specialisation are innovation, intellectual property rights, and competition law.

Prof. Dominique Babini

Open Access and Open Science Advisor, Latin American Council of Social Sciences

Dr. Arianna Becerril Garcia  

Executive Director of Redalyc-AmeliCA-Open Knowledge for Latin America and the Global South, Mexico.

Seminar “Impostor Syndrome and Academic Training in STEM”, 03 March 2020

Seminar “Impostor Syndrome and Academic Training in STEM”, 03 March 2020

DST – Centre for Policy Research (DST-CPR)

Indian Institute of Science

Bengaluru – 560 012

 

DST-CPR LECTURE SERIES

 

Lecture Title: Impostor Syndrome and Academic Training in STEM

Speaker Name and affiliation:
Dr. Devasmita Chakraverty                                                                AssistantProfessor                                                                                              Ravi J. Matthai Centre for Educational Innovation                                     Indian Institute of Management Ahmedabad
Date and Time: March 03, 2020 @ 3:00 pm
Venue: Biological Sciences Auditorium, IISc
Refreshments: 4:00 pm
Abstract:
Impostor phenomenon, popularly known as the impostor syndrome, is an internalized experience of intellectual phoniness. People who feel like impostors are typically bright, motivated and successful, yet have incorrect, unrealistic and self-defeating perceptions about themselves. They think that they are not smart enough and may not have a realistic sense of their competence . These self-perceptions affect how people navigate their career, take professional decisions, and seek advancement opportunities. Academic training in STEM is a time-intensive, complex process. Yet, research examining how those who feel like impostors navigate academic training is not well-documented. This talk will address how individuals in STEM describe their impostor experiences in relation to their doctoral and post-doctoral training. Women and underrepresented minorities, in particular, are more vulnerable to experiencing this phenomenon.

Biosketch: Devasmita Chakraverty is faculty of Higher Education at the Indian Institute of Management Ahmedabad. Prior to this, she was faculty of science education at Washington State University. She has conducted one of the larger mixed-methods studies on the impostor phenomenon, surveying more than 900 people and interviewing more than 400 of them from various STEM and medical fields in the USA, including PhD students, postdocs, faculty, MD students, residents, and physicians. Dr. Chakraverty earned a Ph.D. in Science Education from the University of Virginia, M.P.H. from the University of Washington, and M.Sc. in Environmental Sciences from the University of Calcutta. She has conducted research in India, USA, and Germany. You can connect with her on Twitter @DevasmitaTweets. Preliminary findings from the impostor phenomenon research can be found here: https://bit.ly/2VpTB5w

All are Welcome