Rare Diseases

Rare diseases (RD) are severe and debilitating conditions that affect a small fraction of the population. These diseases are often not prioritised in the agenda-setting of government or the pharmaceutical industry. As such, there is a huge lack of awareness and medical attention to these diseases. This project aims to analyse the policy environment in India and identify the facilitators and barriers towards achieving equitable and affordable healthcare for people living with RDs. Through this project, we also attempt to explore ways to integrate public health thinking into RD management, raise awareness, and initiate discussion around RDs in India.

For more information, please contact Dr. Mohua Chakraborty Choudhury- mohuac@iisc.ac.in